A month of anniversaries, life altering events and haunting memories. While the physical and emotional wounds have long ago healed over, they’ve left behind jagged, deep scars. The increasingly hefty serving of gratitude, humility, perspective and mortality gets harder to swallow each year. A month where the weight of our reality is simply difficult to … Continue reading
I resisted and I ignored. Aside from the label on the back of my license with my diagnosis, doctor’s name, contact info and Paul’s cell, I couldn’t bring myself to bend further and fully embrace the reality of how my life had changed. I knew the risks and I knew I was stupid. I know … Continue reading
We gather in the heat of the southern Atlanta summer each year to honor those who have supported us, worked with us to raise money for the Southeastern Brain Tumor Foundation’s Race for Research and with hope that we’ll celebrate another year of my continued stability. This year was no exception. In-fact, this year was … Continue reading
My camera goes everywhere with me and has become an extension of my hand and a meaningful a tool in capturing our journey as much as my writing has. I’ve tried to balance sharing my writing with my desire to share more images while respecting my readers for what it is they come here to … Continue reading
They announced this weekend from the back of the car that they needed to make a commercial. People, they said, needed to know and hear what they had to say about donating to fund brain tumor research. More people needed to support our team Babes with Brains and the Race for Research. Apparently from the … Continue reading
I spent a few hours sitting under a tree with Harper this afternoon watching the boys help Paul wash our cars. “Be careful! Don’t get that soap in your eyes, it may kill you!!!” Said the dramatic one with authority. Always so over the top I thought as I passed a Cheerio to Harper. … Continue reading
I remember clear blue skies, warm air and feeling carefree. I remember having no fear. I remember the patients in the waiting room and the litany of questions from the PA as he looked at my scans. I remember feeling ambivalent and wondering why I needed to be there. I remember the surgeon. I remember … Continue reading
Each of our fingerprints are unique. Personal mini artworks we leave behind as lasting, important markings and reminders of who we are. I’ve had the privilege this past year to re-connect with another college friend. It’s been amazing to catch up and summarize what’s happened in our lives over the past 17 years since we … Continue reading
We had high hopes this time for the nest. However the circle of life played out instead. It had been a really fun week watching the three gorgeous eggs be tended to and warmed by their momma and eventually watching the happy couple feed their first hatchling. We all became attached to this new little family of five that had … Continue reading
Just in case you missed the news, May is Brain Tumor Awareness month. Like other patients facing cancers, horrid and catastrophic diseases who have months of awareness, the brain tumor community has carved out our own 31 days on the schedule too. So here we are… May 1, 2012. 30 more days to go. Rather than spending a month spewing out facts, figures, emerging research and statistics, I’d … Continue reading
A kiss last week. Just a kiss in the kitchen. Nothing more and nothing less. While the boys pretended to vomit and laugh, they watched Paul and I in a moment we’ve repeated thousands of times throughout our relationship. However, it was the first time I’d ever paused to consider what, if anything, was … Continue reading
Because life is meant to be shared. Because all of life’s adventures are not pretty and perfectly packaged. Because too many people edit their lives and only share the pretty of life. Because this is our life and it’s not always pretty. That is why I write. We’ve been home for a week. Spring break … Continue reading
People call me a survivor and they do so for all the wrong reasons. It drives me crazy. Bat-shit crazy. No one ever called me a survivor until I got a brain tumor. Suddenly, I have a brain tumor, crappy pathology, an undesirable diagnosis, I’m still alive and BOOM!… Now I’m a survivor! Ding, Ding, … Continue reading
GREY MATTER LIFE 