resources: brain food

ABC2 
Accelerate Brain Cancer Cure

Caring Connections
Caring Connections provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss.

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. Since 2004 Caring Connections has provided more than 1.3 million advance directives to individuals free of charge. Caring Connections:

  • Provides free resources and information to help people make decisions about end-of-life care and services before a crisis.
  • Brings together community, state and national partners working to improve end-of-life care through a national campaign called It’s About How You LIVE.

CaringBridge
A free Internet service that provides personalized web pages to help keep friends and family informed of life events. It also allows visitors to post encouraging messages and support on individualized password-protected websites.

Cancer Financial Assistance Coalition

Curetoday.com 
Online community and magazine combining science with humanity, Cure makes cancer understandable.

Cancer411.org
Provides database on clinical trials that lists all ongoing cancer trials. Also offers news articles and other patient resources.

Cancer Hope Network
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.

Cancervive.org
Helps cancer survivors overcome the challenges of “life after cancer.” In addition to support groups, they provide educational materials, insurance information and assistance and advocacy.

FODAC (Friends of Disabled Adults and Children) Georgia
FODAC provides over $8 million each year in equipment and services to the community at little or no cost to the recipients. FODAC is a 501(c)(3) and does not have direct funding from Medicare/Medicaid for the services offered. Most equipment is issued for a suggested donation but some services have mandatory fees.

National Brain Tumor Society

Planet Cancer.org
Website for young adults with cancer. A place to share insights, explore fears, or laugh with others.

Southeastern Brain Tumor Foundation

 

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2 thoughts on “resources: brain food

  1. Jen:

    I was diagnosed with Gr. 2 astro in October 2011. Surgery in late October at Duke. Surgeon couldn’t get all of it, as some of the tumor is in corpus collectum, or something like that. Temodar daily since early December. I read your blog with great interest and intrigue. Curious what part of your brain your tumor was in, as I — like you — would much prefer the “piece of shit” in my head out. But surgeons I’ve spoken with are very reluctant to operate on that part of my brain.

    Thanks in advance for your response.

    Ron R
    rrichards@fosterswift.com

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