Well folks, I made it through 30 proton radiation treatments and 30 oral chemotherapy days (12 shy of the 42 because my platelets dropped too low). Treatment was was hard and far more brutal on my body and my mind that I let on or showed. There is only so much you control with Cancer and I again grabbed what I could control and didn’t let go.
I committed to wear decent clothes and get out of my PJ’s, put on a smile, earrings and lipstick and forge through each day with as positive of a mental mindset that I could muster. No matter how I looked on the outside, I was miserable inside with constant nausea, physical pain and utterly exhausted; however I embraced the mantra “FAKE IT UNTIL YOU MAKE IT” because somehow I had to find humor and levity in the journey or at least attempt to make it all look good.
My medical team who became friends, as well as everyone who became a part of my treatment routine were the foundation of my daily life and were the rocks I leaned upon. They laughed with me, passed me tissues, gave me a shoulder to cry on, listened and never left me feeling alone and appreciated my often insane sense of humor.
Our community of friends, Paul’s colleagues, our children’s teachers, staff, coaches and those we do not know well, have been an endless support network and we hope you know how grateful we all are.
This has been a long road and there is more distance to cover.
I am gaining more energy each day and rarely have nausea. While my short term memory has taken a hit, I am thankful that the mental and physical clouds are lifting as my body no longer has the burden of metabolizing so many medications. My thoughts are clearer, my sleep is good and the physical pain and aches have finally lifted. Fatigue is becoming less of a burden and while I still nap, I can make it through a day without one. I am relishing in a treatment break for the next few weeks, celebrating making it through the first phase, slowly trying to catch up on life and everything put on hold since September. This is my time to begin to heal and our time as a family to start to rebuild.
Next stage is to begin oral chemo again and the timeline will depend on my platelets that have yet to fully recover (hopefully end of February). While I loath the chemo pills and how they make me feel, I fully appreciate and embrace the job they do to fight my cancer and kill the Piece of Shit .
Life is always lived somewhere in the middle and that is where we are trying to get back to; settle into a routine where cancer isn’t dictating the events of our days and adjust to our new life.
We will persevere.
On January 17, Surrounded by friends, family and my entire Emory team, my entire family and I each rang the bell after completing my last treatment. Tears were shed, many hugs were given and received, champagne was drank and thanks were given. It was a momentous day. Thank you all for your support.
We forge on, we persevere and we are grateful you are by our side.
Images courtesy of Liz Stubbs
You are one of the bravest and strongest women I know. Your family must be so proud of you. God bless you all.
Your beautiful smile on bell-ringing day says it all! ❤️
…and Paul and the kids’ smiles too!
-Sheri Z
I am Kathy Bennetts mom and she had told me so much about you and your challenges. You are brave and strong. I read your comments and realize how lucky I am to have a lesser cancer diagnose. Keep on fighting and I will keep on praying. Elaine Coughlin
Congratulations to you and your beautiful family. Our love and prayers to all of you.
Your smile and positive attitude is infectious. So happy all is moving forward. Much love and prayers always.
I am a friend of your Mother’s in Fort Mill and am so happy that you feel like blogging again. I agree with Alex that you are an inspiration to us all and a force to be reckoned with. There are no words for the respect I have for your strength, love for your family, and love for life. There will be brighter days.
Hugs,
Barbara
Hi! I just happened to find your blog today. I am 31 and have a grade II astrocytoma. I had surgery in Feb 2016 followed by 30 days of radiation and 42 days of chemo. I ended up freezing my eggs between surgery and chemo. After treatments, I had a baby, THEN I returned to the protocol and finished my 12 mo of chemo (5 on every 28 days). I just finished that last month and am entertaining the idea of having a second child but I have anxiety about it causes my tumor to grow. I read that you had your third baby after your diagnosis. Do you think that contributed to your new growth at all? Thanks for any advice. So many prayers all the time
Having just read your post and having tears in my eyes, I type this to say that there truly are no words to describe how tremendous you are. I just can’t do your journey justice with a comment. You are an inspiration and a warrior. Sending love and strength your way. You are my idol.
xo Alex