They’ve been asking for over a year to have a lemonade stand and while we’ve supported their idea, we had to be sure they understood that while we live off of a main road, our little street barely gets any traffic. Expectations were set fairly low, but we were optimistic and encouraging nevertheless. A right of passage … Continue reading
The 12th Annual Race for Research is a mere 22 days away! Can’t be with us? Love to run or walk? Want to support a great cause and make a difference? Buy our team shirt, wear it and run or walk on July 23rd in support of Team Babes with Brains, brain tumor research and my journey … Continue reading
…to promote a cause and raise money while simultaneously challenging the last shred of my self-esteem in the waning weeks of my pregnancy are pretty great. So, in the spirit of the cause and in an effort to bring awareness and hopefully raise more money, I’m sharing the video of me promoting, with the help of Tina Buck who lost her … Continue reading
I’m exhausted today. I’ve done it to myself and have no one else to blame. I created for myself a day full of enough activity, nesting, cleaning, projects and anything I can think of on purpose. It’s an introspective day for me and one I’ve been able to completely spend alone thanks to the boys … Continue reading
An extension of our journey begins tomorrow. I’ve been keeping this to myself for quite some time. Not quite sure how to share and not quite sure how it all would be received, I’ve kept my mouth shut. From the outset, in the first moments I wondered if I was being “Punked”and an MTV crew … Continue reading
In the midst of living comfortably in our ‘normal’ and willingly sharing the emotions of our journey along the way, I still get caught off guard and it’s not always a bad thing. While I don’t share all that I write and I don’t share all that is our life and my every single feeling … Continue reading
In the midst of an unrelated online search this morning, I came upon myself. How ’bout them apples! Funny thing is that I didn’t even know the piece was out there. I’ve done a few interviews and a photo shoot over the past 9 months relating to my diagnosis, our journey with my brain tumor … Continue reading
2010 has been a year of tumultuous change for our family and yet, in the end, it’s been a year filled with immeasurable rewards. We’ve carved out one hell of a road this year and I’d do it again. While we’ve followed the path least traveled, in the end, we’re closing 2010 with a stronger … Continue reading
It was going to be awkward having to tell all of you who’ve been praying, thinking of us, crossing fingers, sending well wishes and good vibes that you didn’t put enough effort into it all. Good thing I don’t have to have THAT conversation with you. Now that would’ve been awkward. We’re boasting a 12-0 … Continue reading
I’m dreading my MRI tomorrow. I’ve said it before and I’ll say it again, this process is like playing Russian Roulette with a loaded gun. I’ve managed to survive 11 empty chambers and now I’ll wait tomorrow to see if the 12th chamber will serve up a blank or a bullet. Thank God for sedation and the lingering after effects … Continue reading
Random conversation with mommy friends on the playground about Jennifer Grey on Dancing with the Stars and her recent cancerous Spinal Tumor… Can you imagine going to the Doctor for a check up and finding out-totally out of the blue-that you have a tumor and cancer? One day you’re fine and the next moment you’re … Continue reading
I had the opportunity today to tour what had been my home for a little over a day. Unit 31, the Neuro-ICU at Emory Hospital Midtown. Beginning my tenure this morning as a member of the UPC (Unit Practice Council) of Unit 31 as a Patient and Family Advisor, I knew I was going to revisit and … Continue reading
The journey we’ve been on has been interesting to say the least. There is however, an aspect of our journey that’s been difficult to articulate and more importantly, difficult to carry. Deeply personal, these interactions have framed my perspective as a patient and influenced my point of view as an advocate. The absolute worst part of our … Continue reading
GREY MATTER LIFE 