I know many of you have been asking for an update on where we stand with what method of radiation treatment Aetna (our insurance) will cover.
Every member of my esteemed and world respected medical team supports and believes that I am an ideal candidate for Proton Therapy rather than traditional Radiation Therapy in order to treat my Glioma Brain Cancer recurrence.
- Our initial request for Proton Therapy coverage was denied (we received notification Saturday).
- Peer to Peer Dr. review between Aetna and Dr. Shu at Winship resulted in a denial as well. This came as a shock to Dr. Shu, my radiation oncologist.
- We are currently in the last phase (Patient Appeal). An appeal is being written up on my behalf with supporting data, expert analysis and clinical supporting data and medical recommendations that Proton Therapy would be the best course of treatment for me in addition to oral Chemotherapy.
We have a simple ask for you:
We have been told that if we know anyone who can reach out to decision makers within Aetna they could provide supportive testimony on my behalf that Proton Therapy should be covered and made available as part of my cancer treatment plan, we should seek those contacts out.
So, here we are.
I honestly cannot believe that I am having to beg for people to help me advocate for what is in my best interest in treating my cancer. If you can help. we would be most grateful.
Full name: Jennifer Keenan Giliberto
Treatment Center: Winship Cancer Institute (Proton Center)