I made it through to the other side of August and we welcome with open arms September.
With a promise of cooler temperatures, college football and baseball for the boys, September could not have arrived sooner.
The emotional roller coaster continues and we continue along for the ride.
Harper is now a “failure to thrive” baby as she hasn’t been gaining weight and fell off the weight chart. While the majority of her blood work came back great, we’ve been unable to rule out Celiac Disease. We continue to watch, wait and will re-test. A journey I’ve become accustom to in recent years. While I feel as if she is simply going to be a skinny kiddo, not being able to check the “all clear box” certainly leaves room for concern and worry.
Cooper, after yet another Strep infection followed by yet another viral throat infection will be having his tonsils removed September 17th. Here’s hoping this breaks the cycle of infection, illness and missing school and that his recovery is as swift and comfortable as possible. With the promise of as much ice-cream and frozen treats he can fill a grocery cart with; he hasn’t a worry about the surgery and is counting the days until his frozen treat vacation begins.
Paul has finally made a commitment to his health and runs 5-6 days a week in the early morning hours. I think the looming 40th birthday ahead finally set in and he’s faced the reality that he isn’t getting any younger. Now if I can manage to get myself out there as often we might be making some real progress around here.
Tucker continues to make great strides in facing his dyslexia and learning processing challenges. It’s been a winding ever evolving road and we continue to become enlightened with nuances of his diagnosis and therapies available to assist him. We evolve as we learn more.
Occupational and vestibular therapies continue and we’ll be adding visual therapy in the coming weeks. He proudly sports a new pair of glasses which will serve to assist him to better “track” words and text as he reads. The past few years have been filled with eye-opening, challenging experiences. We navigate each layer of challenges as they emerge and assess what his needs are ane we move forward. He has had moments of self-doubt and insecurity and we’ve done our level best to instill confidence in him. Yet, not once has Tucker ever uttered that he can’t.
When the demons of defeat begin to creep in, we’ve adopted a mantra that seems to solve all his woes.
Practice makes progress. Progress moves you forward. Forward is your future. Perfect doesn’t exist.
While I may not have received my dyslexia and learning processing diagnosis until I was 18 and never benefited from the services, private specialty school and therapies Tucker benefits from, I did manage to persevere when so many told me I couldn’t.
Despite the long list of accomplished individuals with dyslexia such as Anderson Cooper, Richard Branson, Orlando Bloom, Einstein and the late Steve Jobs, I’m humbled by who he actually pays attention to.
He looks to his classmates and peers and he looks to me. “Mommy and I both have dyslexia. She made it through and went to college and does a lot for other people… I can do that too.” He knows I walked the same arduous paths and faced the same challenges and made it out the other side.
As a family we continue to walk those arduous paths and will continue to face each of our challenges head on because that is what life is about and how we live it. We welcome September and all that a new school year, sports season and fall brings.
We will forge ahead and we will continue look to one another for support, inspiration, motivation and an outstretched hand to hold. Practice makes progress. Progress moves your forward. Forward is your future. Perfect doesn’t exist.
What scary news to hear about your daughter. That happened to my cousin and his wife. They noticed that their son seemed to be on the thinner side and not growing. Eventually, they found out it was a problem with how his stomach was functioning (or growing – I can’t remember now). Anyway, he is not on supplemental nutrition at night via a tub in his stomach. Yes, it’s a lot of work for them, but he’s doing so much better now and seem adjusted to it. And I don’t think the doctors thought it would be a lifetime problem. I’ll be thinking of you!
Your post reminds me of a conversation with a coworker the other day: she was talking about how crazy her frenetic summer and fall are, listing all of the to do’s, frustrations of getting here and there and then she paused….she welled up with tears and said: and this is exactly the life I so desperately fought for and envisioned through my breast cancer fight. I, too, am a survivor thanks to the same neurosurgeon and would do well to remember these things when the daily frustrations of life surface. The life that I fought for was one that entailed having a job that was challenging and rewarding and incurred a car payment. 🙂 thank you for helping me remember my joy at the every day!!
Thank you Christiane for your kind words of support and encouragement.
Thanks for your posts. August was a tough month and it makes September even better. I thought of you often during the month and the support you have provided to Angela and me as I passed the one year anniversary of my diagonisis and all the subsequent challenges. It has been a tough year but one made better because of your friendship.
Glad to hear Paul has taken the looming 40th so seriously and that Tucker has such great role models. Keep your spirits high and enjoy every day.
Thank you Peter. You have been on my mind as well this month and it has been an honor to walk with you on your journey.
Jen, your words are resonating. I gain strength and learn from your momentum. Go Jen, Go Paul, Go Tucker, Cooper and Harper!
Thank you Heidi. I am humbled that my words resonate for you. Cheers and thank you.
I disagree. My friend, when it comes to inspiring me, especially when I need it most, you are PERFECT. Finally starting to crack and through my tear filled eyes I see a new post titled “We Forge Ahead”. I read, my tears start to dry, and I can breathe again because “we forge ahead”. Love to you all.
Thank you Val. You and your family are in my thoughts and I can only imagine the difficult time you are going through. Hugs.
Cheers to a new month! Love ya!