It has taken some time to digest what has happened this past week. To say we are disgusted, horrified and shocked would be an understatement. Yet, in contrast we also find our spirits lifted by the countless messages of support, encouragement, shared disgust and pleas to pick our heads up and keep them high. We thank you.
Aside from personally grieving, we’ve spent some time this week using our pain as a learning experience for our children. A lesson about the power of words and that purposefully hurting another benefits no one.
Our journey as a family these past two and a half years has been filled with highs and lows. As I have written numerous times about our journey with this piece of shit brain tumor, we’ve been forced to face my mortality, questions about how my quality of life would be affected and we’ve acknowledged that a new definition of “normal” would need to be created. We have redefined our lives, discovered our new normal, and we are celebrating stability. We are happy and we are content.
Aside from death and taxes, there are no guarantees in life. Last time I checked the mirror I didn’t see an expiration date stamped on my forehead and I’d bet that you don’t have one either.
We have spent a great deal of time evaluating and assessing the past few years what we really want in life, how we want to live it and who we want to share our journey with. We have tightened our circle and weeded through the garden of friendship in the process. While I may appear to share the entirety of our lives here on Grey Matter Life, in actuality, these posts while filled at times with painful honesty, represent a mere glimpse into our lives. We hold deeply our privacy and fervently maintain that we closely guard decisions that affect our children, family and our lives.
We’ll always be fighting this brain tumor and always be fearing it, however we are moving forward in equilibrium with support from our medical team and with our own personal resolve. With profound contentment and resolve we are moving on and we are living life to the fullest and loving it.
We are living without fear and we are living with love in our heart and embracing the unknowns that come with my diagnosis as a gift.
It was with sorrow, pain, disgust, horror and disappointment that I received and read the following words emailed to me this week. I’ve chosen to take excerpts from multiple emails from the same person over the course of two days rather than entire messages since she, nor her words deserve an audience in their entirety.
You are a bitch, and a selfish one at that. The fact that you are bringing another baby into this world is selfish. Everyone feels this way. I feel sorry for your son, and WE all feel horribly bad for your unborn child.
If you have limited time on this earth, and you already have 2 children that may lose their mother far too early, why would you have another baby only to suffer the same pain. for someone who appears not to be too fond of the kids she has now, why have another? you should be spending every moment you have with them, rather than strangers down at the hospital.
Sadly, I know this person. A mother I’ve known for years at my children’s school, spent time with pushing our children on swings on the school playground and chatting together with other moms. Aside from years spent at school, we’ve never had a friendship that existed outside of the school environment and in the end, whether a friend, acquaintance or stranger, I suppose it really doesn’t matter.
We stand as a family against this type of verbal attack, hate and malice. It’s cowardly. As Paul put it, hiding behind email to attack another person with words and sentiments they would never have the courage to utter in person is the act of a coward.
I’ve had to separate my emotions and my feelings and address the bigger picture. This person probably needs help and I sincerely hope she gets it. As one friend put it, you can’t waste time making the illogical, logical and as such there is no rational approach to addressing her. Thus, we’ll never directly respond to her.
Among many things, I am a mother, wife, patient, survivor and I am an advocate. As an advocate, I approach this attack and I think about other patients and survivors. I think of each of them and each of their unique journeys. I think about their fears and their journey at coming to terms with defining their own new normal. I think about all the decisions that once seemed simple and now seem more complex and I have concern for those who may fall victim to people like this and not have the support system like my family does. I think of those who may not have the gumption to swallow hard, keep their head up and move on from this type of attack.
If you are reading this, have faced an attack like this and feel alone, please know you are not. You can overcome an attack like this and you can move on. You can rise above this.
No one should ever have to read these words. I don’t care who you are or what your journey in life is. There are many paths to the same end point and it is not anyone’s place to decide how any of us get there. I hope that each of us in our journey through life is able to face our challenges, re-organize our plans, keep moving forward and find courage with embracing the gifts and the rewards each of our individual lives offer.
No one should experience the feelings we have this past week and no one should find it appropriate to tear down another human being.
Our inner strengths, experiences, and truths cannot be lost, destroyed, or taken away. Every person has an inborn worth and can contribute to the human community. We all can treat one another with dignity and respect, provide opportunities to grow toward our fullest lives and help one another discover and develop our unique gifts. We each deserve this and we all can extend it to others. Anonymous
As much as I tried to hide my tears and shaking body from my son, it was a task I was unable to successfully complete. My son saw me at my most vulnerable and he saw me experience something that I hoped he never would. Paul and I simply explained that someone had hurt my feelings. A concept he could understand, it’s also a concept that we can all understand.
We told him and later his brother, that words can hurt people as much as they can bring people happiness. We asked them to always consider the feelings of others and how they would want to be treated before they acted on emotion or anger. In the end we said what we’ve said many times,
If you don’t have anything nice to say, don’t say anything at all.
We are moving on like we always do with our heads held high. We continue to feel joy and elation at the approaching arrival of our third child and my stability as a brain tumor patient. I feel deep sadness that this person feels that we should have given up on living based upon my diagnosis and refused to press on, enjoy and live our life.
Giving up is not what we are wired to do and failing to live life to its fullest is not how we exist. We will continue to embrace the journey we are on and no one person or their words can take from us or move us to change our perspective or our resolve.
Onward we go…
Every once in a while I check out your blog to see how you guys are doing. Stay strong. You have always been and always will be a wonderful person. That woman’s a douche.
P.S. I’m married now … 🙂
I am speechless and I am sorry that this happened to you and your wonderful family.
Proud of you Jen…great talking to you yesterday. love,
Life is precious. It is also precarious. All any of us has is this moment. We create our lives and our loves moment by moment. Maybe it’s the people who are most aware of how precarious life can be, who are the ones who make the most of each of those moments. What an incredible gift to give a child.
I’m so glad that your family has managed to rise above this unjust attack. As you say, the woman who did this probably needs help.
If life expectancy were a prerequisite for having babies, then most of us surely would not be here today. Women in previous centuries risked death every time they had a child, as do women in some parts of the world today. I know that many of these women didn’t necessarily choose to bring forth life. But you and your husband have, and may you be blessed for it.
Big hugs from Scotland xox
Hi Jen, Billy, Kelly’s husband here. As with Patrick, I’ve followed and cheered your storyline through Kelly’s interpretations over the years. Paul’s comment about cowardice reflects my beliefs as well, people who pass on their pedijust, hatred or inculcate another human, are by definition cowards. If you hate someone or something, recognize where that emotion came from and from whom, and have the courage to let your hate pass away with you. Give another entity a chance to be spared the hate in your heart. Nurture another mind before yours expires.
My sister, Karen, shared with me your ordeal… I have not stopped thinking about it since. I have continued to hope that, with each passing day of distance from reading these heartless and ignorant emails,you have gained strength and found healing. As I read your post today, it seems as though you have and for that I am so relieved.
You are a remarkable person in every conceivable way. You deserve every happiness. When I heard that you were expecting, I felt so glad for you. The decision to have another baby is not for anyone to judge. The journey is yours, and you are taking steps ahead with a full heart and a clear mind. Celebrate your new path and feel good for having reached this point in the healing process ~ mind, body, and soul.
I can’t help but think of a bumper sticker that I site often, “Mean People SUCK.” Your malicious emailer sucks more than anyone I can think of!
Hang tough, be well, and keep on doing what you are doing!
There is nothing wrong with giving a child the gift of life when the parent’s life expectancy may be at the forefront of life’s concerns. The truth of the matter is that we can all die at any time. That is why we strive to appreciate the gift that is the present. Your new child will have the love of you and your husband and his/her two brothers. No matter who leaves this Earth first, there is no greater gift then life, then family and of love.
And, I also believe that it is a good experience that your son saw you cry. Our children need to know that we are human too, that we have feelings and our feelings can get hurt. You’ve empowered your son by showing him that you can give your sadness a voice. For now, he know that it is alright to experience those feelings, and that life indeed goes on after the sadness has passed.
Love to you and all of your boys. xo
I was thinking more about that email you got. And it reminded me of a discussion I had with my husband recently.
I don’t have any sort of health issues so I definitely don’t really grasp the concept of mortality like you probably do, but as a firefighter and just as someone who lives in Alaska and sees people die and disappear more often than you want, I do feel like death is a possibility every day.
And recently I was thinking that my greatest fear is not death, but it’s dying for some unexpected reason before being able to have a child with Scott.
I have full faith that my husband could raise a child (or several) alone and while it may be hard I feel like that child would be loved and raised well and be a gift. Any child might lose a parent young; that isn’t a death sentence on them or an indicator that they will be a drain on society in any way.
And to somehow think that because your odds might be slightly skewed more than the average person (I’m not sure if that is true in your case or not) really doesn’t change the fact that any of us might have something happen to prevent us seeing our kids grow up.
You’ve probably thought about all this a billion times since you got that email but it really sank in today about the lack of logic that woman had. I think the best gift you can give the world is a little bit more of you, regardless of what might happen in the future.
This is Patrick Bennett, Kathy’s husband. It has been several years since we have spoken and I admit that I have not been an avid follower of your blog, but have gotten periodic updates from Kathy, who most certainly is. I have often thought of how I would handle a similar circumstance. I love my wife beyond words and the prospect of losing her fills me with utter terror, I am sure Paul has felt these emotions many times. My heart goes out to him, you and your wonderful children.
The email from the woman in your lastest post literally brought tears to my eyes. It is simply one of the most vile things I have ever read. Paul is correct that it is pure cowardice to communicate such hatred in an email. Conversly, your reaction was brave, spiritual, graceful and a wonderful lesson to your children.
I do not know if having another child is the right or wrong thing to do and frankly it is none of my fucking business, nor is it hers. But I know that your yet to be born child will feel your love and be brought up in a home where kindness, tolerance, compassion and true love are abundant and taught through real life experiences, rather than just given lip service. It makes one wonder what this woman is teaching her children?
I eagerly await (I plan on reading your posts regularly) continued updates on your life with your family and the lessons you so elequently teach us all.