We’re rapidly approaching Team Babes with Brains fourth year at the Southeastern Brain Tumor Foundation’s Race for Research and our cast of characters deserves a shout out. While one may argue I should address the billowing bubbles coming from my washing machine instead of simply closing the door and pretending I didn’t see it; or … Continue reading
Tagged with Hope …
The Unexpected Gift
Depending on the day, our life goes by many a different name. There’s ‘The Journey’, The Adventure’, ‘The Whirlwind’, ‘The Crazy Train, ‘Shit Luck Train Wreck’, ‘Disaster’ and the list goes on as I’m sure you get my point. Regardless of what Paul and I happen to be feeling, thinking about and dealing with, I’ve consistently … Continue reading
What’s Worse?
Since our beloved piece of shit was discovered before it actually had a chance to show its nasty side with seizures and profound headaches, I suppose you could say that we hit the jackpot. The pot of gold at the end of the rainbow where you discover your fate but the sticker on the pot … Continue reading
So here’s the thing…
It’s very difficult balancing being an advocate while being a patient at the same time. The lines get blurred and in the end, no matter the situation, I’m still a patient and there’s no escaping that. I had the privilege to speak yesterday at the annual Mini Brain Tumor Symposium held at Winship Cancer Institute … Continue reading
Quick Hop Onto A Soap Box
It’s raining and it’s Monday. I’m moving a little slow and drinking copious amounts of coffee in an attempt to drown out the squeaky wheels in my head. Got to love it when the newly constructed joints in your skull pop around when you’re chewing breakfast. Makes for a very glamorous and irritated domestic goddess! … Continue reading
For Those Who Just Must Know
Maybe it’s because I have two boys. Maybe it’s an undying curiosity and an inability to respect personal and private boundaries. Maybe I am too sensitive to the subject. Nevertheless, I am asked all the time if I want more children. If I want to try for “that girl”. I’m asked if three boys are … Continue reading
Sharing, Unexpectedly, A Story About Day 1
I volunteer my time as a Patient and Family Advisor for Emory Healthcare as a part of their Patient and Family Centered Care initiative. Working in partnership with administrators, physicians and nurses, I participate in the planning, delivery, and evaluation of healthcare at Emory. Simply put, it’s about including patients and their families as integral … Continue reading
Gratitude
It is that time of year again. The leaves have all fallen, the Turkey has been eaten (or in our case, the beef tenderloin – we roll differently in our crib), the Christmas tree is up and the house sort of decorated and Santa is in the boys hearts and minds. Now it is my … Continue reading
GREY MATTER LIFE 