Homemade hamburger buns, organic beef burgers hot off the grill, a heaping bowl of fruit and sides of milk; it was an ordinary Tuesday night dinner. Maybe it’s our new farm table. Maybe it’s how we’ve conceived a new evening routine, eating later and accommodating Paul’s long days. Whatever it is, it’s working. We are more spiritual … Continue reading »
Good news today… The Piece of Shit has been behaving itself since we last gave it a look. We are so pleased that it is being so cooperative. My MRI this morning revealed two very important things. One… there has been no tumor growth. Two… my brain is still in there. Whew! What a relief. … Continue reading »
Please… Don’t tell us not to worry and don’t tell us it will be fine. Don’t tell us “you just know it will be ok” and don’t tell us not to stress out. Please don’t confuse our anxiety right now with desperation. Our anxiety appreciates your support over your pity. We’ve been down this road, running this fucking MRI marathon, for … Continue reading »
I resisted and I ignored. Aside from the label on the back of my license with my diagnosis, doctor’s name, contact info and Paul’s cell, I couldn’t bring myself to bend further and fully embrace the reality of how my life had changed. I knew the risks and I knew I was stupid. I know … Continue reading »
I remember clear blue skies, warm air and feeling carefree. I remember having no fear. I remember the patients in the waiting room and the litany of questions from the PA as he looked at my scans. I remember feeling ambivalent and wondering why I needed to be there. I remember the surgeon. I remember … Continue reading »
Just in case you missed the news, May is Brain Tumor Awareness month. Like other patients facing cancers, horrid and catastrophic diseases who have months of awareness, the brain tumor community has carved out our own 31 days on the schedule too. So here we are… May 1, 2012. 30 more days to go. Rather than spending a month spewing out facts, figures, emerging research and statistics, I’d … Continue reading »
We’re all waiting for something. Whether banal or earth shattering, each something we wait for means something meaningful to each of us. If there’s one thing I’ve learned writing this blog, it’s that while I write for me and my family, I’ve come to appreciate that what I write affects others. If I’m feeling something, … Continue reading »
“Piece of shit is not there.” For those who may not follow or need a translation, this means that my MRI today was clean. It also means that my medical team shares and appreicates my sense of humor which is as equally wonderful as the six words above. Onward we go back into our life in-between and we thank you for all your support! … Continue reading »
I took a few hours today and went for a long, long, long walk. With Harper bundled in her stroller, music playing in my ears and a longing to get out and get away, the two of us fled the grind of the suburban landscape. Friday can’t come soon enough. The weight of the count … Continue reading »
Since the CNN piece aired, I’ve been asked to explain how I found the courage and strength to face all this. How do you explain something that you’re not even sure your successfully accomplishing? What I feel and believe is that I am working with the cards I was dealt and I’m moving forward. I take life one day at … Continue reading »
Below is the blog post I wrote for the CNN Human Factor piece that aired this morning. You can find it here as well. ******** June 20, 2007 we began living a new life. In a brief moment, the world stopped spinning and a resounding smack signaled the closure of the life we knew. Nothing … Continue reading »
CNN Giliberto , posted with vodpod Update: Below is the link that includes the blog entry on CNN.com http://thechart.blogs.cnn.com/2011/08/16/human-factor-brain-tumor-makes-today-more-meaningful/
I’m exhausted today. I’ve done it to myself and have no one else to blame. I created for myself a day full of enough activity, nesting, cleaning, projects and anything I can think of on purpose. It’s an introspective day for me and one I’ve been able to completely spend alone thanks to the boys … Continue reading »
